VIEIRA, Daniela Koeller Rodrigues e FAVORETO, César Augusto Orazen. Narratives on health: reflections on care for people with disabilities and genetic disease within the Brazilian National Health System (SUS). Interface (Botucatu) [online]. 2016, vol.20, n.56, pp. 89-98. Epub 03-Nov-2015. ISSN 1807-5762. http://dx.doi.org/10.1590/1807-57622015.0203.
The factors that influence effective healthcare for people with disabilities and genetic diseases within SUS include the presence of stigma, relationships marked by biomedical power and institutional violence. This paper aims to discuss the issues that run through this care, guided by narratives on this author’s experiences of caring for children and families. This text was written in essay format and discusses the issues surrounding healthcare and benefits, within the context of practices driven by biomedicine and biopower. The narratives reveal the transforming capacity of affection and additional potential of meetings, marked by circuits of benefits and guided by construction of interpersonal relationships between professionals and service users that promote new spaces and forms of healthcare.
Palavras-chave : Comprehensive Health Care; Narrative; Medical genetics; Disabled people.
